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Everything we do starts with a simple question: How can we create more value for people with severe diseases?

SUPPORT PATIENT ORGANISATIONS

 

UK Patient Organizations

Clause 27.8 of the 2016 ABPI Code requires Pharmaceutical companies to make publicly available, at a national or European level, a list of patient organizations that it has engaged to provide significant contracted services.

 

The following list details all patient organizations that we have contracted with on or after 1st January 2015 until the 31st December 2015. Total fee for contracted services (in UK pound sterling & euros) for the specified period for each patient organization along with details of services appears after the description of support.

 

___________________________________________________________________________________

 

1.      Beat Parkinson’s

 

UCB paid honoraria for 2 of its members to attend an internal UCB meeting as advisors.

 

£300.00

_______________________________________________________________________________

 

2.      The Cure Parkinson’s Trust

 

UCB paid honoraria for a representative of the organization to speak at 3 UCB organized meetings and an internal advisory board.

 

£1,900.00

______________________________________________________________________________

 

3.      Diabetes UK

 

UCB paid honoraria for 2 representatives of the organization to speak at a UCB organized meeting.

   £1,000.00

_____________________________________________________________________________________

 

4.      Epilepsy Society 

 

UCB paid honoraria for the provision of speakers who shared their experience of epilepsy at an internal training course and an advisory board meeting.

 

£700.00

_____________________________________________________________________________________

 

5.      Matthew’s Friends

 

This is an organization specializing in Medical Ketogenic Dietary Therapies for epilepsy and other neurological conditions. UCB paid an honorarium for a representative of the organization to speak at a UCB organized meeting.

 

£500.00

______________________________________________________________________________

 

6.      NASS (National Ankylosing Spondylitis Society)

 

UCB paid honoraria and expenses for a representative of the organization to speak at 3 UCB organized meetings. 

 

£1,100.00

______________________________________________________________________________

 

7.      NRAS (National Rheumatoid Arthritis Society)

 

UCB contracted NRAS to offer information and support to patients as part of a patient support program.

UCB paid honoraria for members of the organization to speak at an internal training event and attend an advisory board meeting.

 

£17,000.00

______________________________________________________________________________

 

8.      RNIB (Royal National Institute of Blind People)

 

UCB contracted RNIB to provide expertise on alternative formats, Braille, large print and audio for patient information leaflets.

 

 

£720.00

______________________________________________________________________________

Please note that UCB Corporate & other UCB affiliates may also work with UK based patient organisations, full details of which can be found at our corporate website –

http://www.ucb.com/patients/programmes/patients_europe/2015


Updated:  March 2016

 

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