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Key strengths

UK Patient Organizations

UCB works with a number of patient organizations in the UK. In order that these activities are transparent, clause 27.7 of the UK ABPI Code of Practice 2016 edition requires that each company must make publicly available, at a national or European level, a list of patient organizations to which it provides financial support and/or significant indirect/non-financial support, which must include short descriptions of the nature of the support that is sufficiently complete to enable the average reader to form an understanding of the significance of the support.

The following list details all patient organizations that have been supported financially or through a significant indirect / non-financial support by UCB in the UK and provides a short description of the activities commenced / ongoing on or after 1st January 2015 until 31st December 2015. Total funding (in UK pound sterling or euros) for the specified period for each patient organization appears after the description of support.

 

___________________________________________________________________________________

 

1.      Age Cymru

 

UCB provided financial support for the organization to hold fringe meetings in conjunction with the Chartered Society of Physiotherapists at Welsh political party conferences to raise the awareness of falls in the elderly.

 

£682.00

_______________________________________________________________________________

 

2.      All Wales Epilepsy Forum

 

UCB provided monies towards the catering costs at a Welsh epilepsy forum hosted by this umbrella organization. UCB is a member of this forum alongside Epilepsy Action, Epilepsy Wales & SUDEP Action.

 

£198.97

______________________________________________________________________________

 

3.      Arthritis Care Northern Ireland

 

UCB provided a grant to support the organization’s annual Health Professional Lecture.

   £650.00

_____________________________________________________________________________________

 

4.      Beat Parkinson’s

UCB supported the organization to launch a fundraising challenge – The Climb.

£5,000.00

_____________________________________________________________________________________

 

5.      Crohn’s and Colitis UK

 

UCB employees won an award to donate to a charity of their choice and chose to make a donation to this organization.

£1,000.00

______________________________________________________________________________

 

6.      Epilepsy Action

 

UCB provided sponsorship for the development of an Epilepsy Commissioning Toolkit: a web based hub containing information and data on epilepsy for Clinical Commissioning Groups. 

 

£25,000.00

______________________________________________________________________________

 

7.      Epilepsy Alliance

 

UCB provided funding towards a 2 day Epilepsy Nurse Induction Course run by Epilepsy Alliance (Epilepsy Action and Epilepsy Nurses Association)

 

£2,722.00

______________________________________________________________________________

 

8.      Epilepsy Society

 

UCB provided a grant for the production of “Living with Epilepsy” videos focusing on frequently asked questions about epilepsy.

£4,920.00

______________________________________________________________________________

 

9.      Encephalitis Society

 

UCB paid a donation to the organization in lieu of an honorarium for a speaker at a UCB organized meeting.

 

£500.00

______________________________________________________________________________

 

10.   EPDA (European Parkinson’s Disease Association)

 

UCB supported Board travel grants, Political Affairs & Policy and Projects Development:

 

a) EPDA digital publication

 

b) PDG (Parkinson’s Development Group) Think Tank meetings.

 

UCB supported the My PD Journey Project.

 

 

Euro 25,000.00

__________________________________________________________________________

 

11.   ITP (Idiopathic Thombocytopenia Purpura) Support Association

 

UCB gave the organization funding towards the cost of producing its quarterly journal “The Platelet” and running the ITP Patient Convention in 2015.

 

£3,000.00

__________________________________________________________________________

 

12.   Lupus UK

UCB provided a grant towards the cost of 2 representatives of the organization attending an International Congress on Systemic Lupus Erythematosus in Vienna.                                                                                                                                                                                                                                                                                                                            £700.00

__________________________________________________________________________

 

13.   Lupus Europe

 

UCB provided support for a planning meeting held at EULAR in Rome. UCB supported the organization’s 2015 annual convention held in Vienna. UCB supported a Lupus Europe organized patient panel in Brussels.

 

                                                                                                                                    Euro 35,000.00

__________________________________________________________________________

 

14.   Myasthenia Gravis Association (Myaware)

UCB provided funding to support the production of its Myaware quarterly journal.                                                                                                                                                                                                                                                                                                                     £2,000.00

__________________________________________________________________________

 

15.   NASS (National Ankylosing Spondylitis Society)

 

UCB provided funding to support an awareness campaign aimed at improving early diagnosis of Axial Spondyloarthritis.

 

                                                                                                                        £10,000.00

 

 

__________________________________________________________________________

 

16.   Neurological Alliance

 

The Neurological Alliance is a campaigning organization – the collective voice of over 80 brain and spine charities and other key stakeholders in England working towards better services for the millions of people in England living with a neurological condition. UCB supported this organization in 2015.

 

                                                                                                                        £10,000.00

__________________________________________________________________________

 

17.   Northern Neurological Alliance

 

UCB provided a grant for the development of a monitoring and evaluation tool for people with long term neurological conditions receiving domiciliary care. On request UCB provided an existing UCB PD Care Home Progress Chart for use during the development of the tool.

 

                                                                                                                        £21,696.00

__________________________________________________________________________

 

18.   NRAS (National Rheumatoid Arthritis Society)

 

 A donation was made to the organization to support a fundraising event – The Great North Run.

 

                                                                                                                        £500.00

__________________________________________________________________________

 

19.   Parkinson’s UK

 

UCB paid a third party to convert PUK’s educational materials into digital format. Grants were provided to produce 2 patient digital stories and print postcards advertising online courses. UCB paid donations to the organization in lieu of honoraria for speakers at 2 UCB organized meeting. On request UCB allowed PUK the right to use a PD Care Home Progress Chart in its training modules.

                                                                                                                        £12,527.20

__________________________________________________________________________

 

20.   RLS-UK

 

UCB provided part of the funding required to produce new patient information booklets, a Facebook campaign and incorporation of a sign language function into their website.

 

                                                                                                                        £3,000.00

 

__________________________________________________________________________

 

21.   Sexual Advice Association

 

UCB gave a donation to support the work of the organization.

 

                                                                                                                        £500.00

 

Please note that UCB Corporate & other UCB affiliates may also work with UK based patient organisations, full details of which can be found at our corporate website –

http://www.ucb.com/patients/programmes/patients_europe/2015


Updated:  March 2016